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Professor Mary Mc Carron

Professor of Ageing & Intellectual Disab (School of Nursing & Midwifery)


Professor Mary McCarron, PhD RNID RGN BNS FTCD is Professor of Ageing and Intellectual Disability, Director of the Trinity Centre for Ageing and Intellectual Disability (TCAID) and Executive Director of the National Intellectual Disability Memory Service. She has held many senior leadership roles in Trinity College including Dean of the Faculty of Health Sciences and Head of the School of Nursing and Midwifery. Professor McCarron is the founder and Principal Investigator for IDS-TILDA, the longitudinal comparative study on ageing in persons with intellectual disability including persons with Down syndrome, a global first. IDS-TILDA increases understanding about how lives and chronic conditions change over time for this population, drives changes on healthcare practice and national health policy. Professor McCarron has also led a longitudinal cohort study of dementia in people with Down syndrome spanning over 25 years, which has led to the development of Ireland's first dedicated National Memory Service for people with an intellectual disability, where she serves as Executive Director. A champion of patient and public involvement in research (PPI) McCarron is Principal Investigator of PPI Ignite Programme at Trinity College Dublin, part of the national network among universities in Ireland funded by the HRB. She received the inaugural HRB Impact Award. She is co-applicant on the HRB's Clinical Research Network Awards for Dementia Trials Ireland (DTI), a world-class clinical trials' infrastructure to support and grow dementia intervention studies. In addition, she is the Irish Lead on the H21 Consortium working on Clinical and trial outcome measures for dementia in individuals with Down Syndrome, Professor McCarron has been a key advisor on ageing and policy issues to various governmental and other groups at a national and international level and an active member of the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD).
  Aged care nursing   Ageing & Intellectual Disability - Changing Service Needs   Ageing & Intellectual Disability Issues   Ageing, Health and Intellectual Disability   Dementia in people with Down's syndrome   Mental health nursing   Palliative Care and Dementia   Palliative care nursing   People with Down Syndrome & Alzheimer's Disease
 EQUIP: Examining Quality, Use and Impact of Psychotropic (Use) in older adults with intellectual disabilities
 Prevent Dementia DS
 MOOC
 Get Wise About Your Health
 PPALS2

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Details Date
Stewarts Care (Appointed to board February 2021) February 2021 - Present
Peamount Hospital (Appointed to board December 2018) December 2018 - Present
Member of the National Steering Committee for the National Dementia Office, HSE 2017 - Present
Advising the National Federation of Voluntary Bodies Working Group on Health Outcomes for Older Adults with Intellectual Disabilities 2017 - Present
Appointed by the Minister for Health to the Steering Committee of the National Trauma Strategy 2015
Dental Hospital (The Minister for Health appointed the Board in June 2015) Dental Board Meeting Performance and Succession Committee Meeting (Chair) June 2015 - Present
Board member of DOCTRID 2015 - Present
Language Skill Reading Skill Writing Skill Speaking
English Fluent Fluent Fluent
Details Date From Date To
Member, The UK-Irish Consortium for ageing well with a lifelong disability: Priorities, perspectives and opportunities 2021 Present
Member, HSE National Steering Group on Dementia, National Federation of Voluntary Bodies 2008 Present
Member, TILDA Steering Committee, Trinity College Dublin 2006 Present
Member, European Association of Palliative Care Taskforce on Palliative Care/End of life Care for People with Intellectual Disabilities 2005 Present
Member, International Down Syndrome Special Interest Group 2004 Present
Member, Special Interest Group (SIRG) on Aging and of the Nursing Special Interest Group 2000 Present
Advisor, Ageing related issues in persons with Intellectual Disability, Inclusion Ireland 2000 Present
Member, International Association for the Scientific Study of Intellectual Disability (IASSID) 2000 Present
Member, National Steering Committee, National Dementia Office, Health Service Executive (HSE) 2017 2018
Member, National Working Group on Extending Palliative Care to Persons with Advanced Dementia 2008
Member, Research Committee, National Federation of Voluntary Bodies 2008
Member, T21RS COVID-19 Impact group 2021 Present
External Member, Residential Care Standards for Older People by the Health Information Quality Authority (HIQA), St. Patrick's Hospital Cashel 2008
Member, Professional Advisory Group, Alzheimer's Europe Conference 2005 2004 2005
Member, Strategic Planning Group on Older People with Disabilities 2000 2004
Chair, 2003 Roundtable Session on International Service Delivery for Persons with Intellectual Disability and Dementia, Volos, Greece 2003 2003
Guest Reviewer - Irish Journal of Psychological Medicine, Journal of Intellectual Disability Research & American Journal of Mental Retardation
Member, Independent Scientific and Ethics Advisory Board - Gene overdosage and comorbidities during the early lifetime in Down Syndrome (EU Research Project) 2020 Present
Member, Irish Gerontology 2020 Present
Member, Trisomy 21 Research Society 2019 Present
Member, National Steering Committee on Open Science, Health Research Board 2018 Present
Member and founder, National Federation Working Group on Health Outcomes for Older People with Intellectual Disability 2018 Present
Member, Steering Committee, National Dementia Office 2016 Present
Member, Trinity EngAGE, Trinity College Dublin 2010 Present
Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M., End of Life and People with Intellectual and Developmental Disability. Contemporary Issues, Challenges, Experiences and Practice., 1, Switzerland, Palgrave Macmillan Cham, 2022, XXXIV - 519pp, Book, PUBLISHED  DOI  URL
Positioning the Issues: An Agenda for Future End-of-Life Research, Policy and Practice in, End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp435 - 463, [Wiese, M.Y., Stancliffe, R., McCallion, P. & McCarron M.], Book Chapter, PUBLISHED  DOI  URL
Use of Do-Not-Resuscitate Orders in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp407 - 434, [McCallion, P., Ferretti, L.A. & McCarron, M.], Book Chapter, PUBLISHED  DOI  URL
Accessible Funerals and People with Intellectual Disability in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp265 - 296, [Forrester-Jones, R., McCallion, P., McCarron, M., Stancliffe, R.J. & Wiese, M.Y.], Book Chapter, PUBLISHED  DOI  URL
Supporting People with Intellectual Disability at End of Life: Moral Distress among Staff Caregivers During COVID-19 in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of life and people with intellectual and developmental disability: Contemporary issues, challenges, experiences and practice, Switzerland, Palgrave Macmillan Cham, 2022, pp235 - 264, [McCarron, M., Kelly, K., McCallion, P., Burke, E., Haigh, M. and Wormald A.], Book Chapter, PUBLISHED
Building Shared End-of-Life Supports and Cross-Training for Hospice/Palliative and Intellectual Disability Services Providers in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp211 - 233, [Ferretti, L.A., McCarron, M. & McCallion, P.], Book Chapter, PUBLISHED  DOI  URL
Living and Dying Well with Dementia in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp179 - 209, [McCarron, M., Allen, A.P., Mulryan, N., Leigh, M., O'Reilly, L., McCarthy, C., Dunne, P., Reilly, E. & McCallion, P.], Book Chapter, PUBLISHED  DOI  URL
Experience of End-of-Life Issues by People with Intellectual Disability in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp29 - 57, [Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M.], Book Chapter, PUBLISHED  DOI  URL
Brennan, D., D'eath, M., Dunne, N., O'Donovan, M-A., McCallion, P., & McCarron, M., ). Irish Social Policy to Family Carers of Adults with an Intellectual Disability: A critical analysis, Journal of Intellectual Disability, 2022, Journal Article, PUBLISHED  DOI
Kirwan, R., Sheerin, F., McGlinchey, E., McCallion, P. & McCarron, M., Functional loss in older adults with intellectual disabilities and dementia, Learning Disability Practice, 2022, Journal Article, PUBLISHED  DOI
  

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Byrne, K., MacGiolla Phadraig, C., Daly, B., McCarron, M. & McCallion, P., The Oral Health Status of Older People with Intellectual Disabilities in Ireland. Initial Findings., Irish Society for Disability and Oral Health (ISDH) , The Lyrath Estate Hotel, Kilkenny, 23rd June, 2022, Oral Presentation, PUBLISHED
McCarron, M., Physical Health issues for older adults with an Intellectual Disability: Evidence form the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing(IDS TILDA) , Physical health in people with intellectual disability: Current perspectives and future directions, Virtual, 25th May, 2021, The Royal Society of Medicine, Invited Talk, PRESENTED
Darren McCausland, Andrew P. Allen, Margaret Haigh, Fintan Sheerin, Eilish Burke, Eimear McGlinchey, Fidelma Flannery, Niamh Mulryan, Philip McCallion and Mary McCarron, Overcoming Adversity: The Continuing Impact of COVID-19 on People Ageing with an Intellectual Disability in Ireland. Findings from the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) COVID-19 Sub-Study, Trinity College Dublin, December, 2021, Report, PUBLISHED
McCarron, M., COVID-19 and Older Adults with an Intellectual Disability: A TCAID Perspective, SJOG: Online Research Study Day, Online, 18th November, 2020, SJOG, Invited Talk, PUBLISHED
McCarron, M., Responding to Early onset Dementia in Persons with Down Syndrome: Award-winning Approaches to Assessment and Care, CLE Wednesdays; Clinical and Lived Experiences (GBHI), Online, 28th October, 2020, GBHI, Invited Talk, PUBLISHED
McCarron, M., Ageing and Intellectual Disability: What it may mean for some people in retirement, Retirement Planning Council of Ireland, Online, 14th October, 2020, Invited Talk, PUBLISHED
McCarron, M., Down syndrome and Dementia - Inclusion and Equity, Dementia Care Conference, Online, 29th September, 2020, Invited Talk, PUBLISHED
McCarron, M., Women in Science - Building an enabled world to foster equality, Royal College of Physicians of Ireland, Kildare Street, 9th March, 2020, Invited Talk, PUBLISHED
McCarron, M., The Irish Longitudinal Comparative Study on Ageing in Persons with an Intellectual Disability (IDS TILDA): Major Findings and Implications for Care, Camphill Community, Kilcullen, 29th February, 2020, Invited Talk, PUBLISHED
McCarron, M., Understanding key issues in ageing for people with an intellectual disability:Ten years of data from IDS-TILDA, COPE Foundation Services, Cork, 25th February, 2020, Invited Talk, PRESENTED

  

Page 1 of 13
Award Date
Fellow, The International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) 2022
Fellow, American Academy of Nursing 2020
Winner, Inaugural Impact Award, Health Research Board 2019
Chair, Ageing and Intellectual Disability 2014
Trinity Fellow April 2011
Clinical Fellowship in Nursing and Midwifery by the Health Research Board 1999
Nurse of the Year 1993
An international expert in the field of ageing and intellectual disability, Professor Mary McCarron is the founder and Principal Investigator of the first longitudinal study on ageing in people with an intellectual disability (IDS-TILDA) to be conducted within the EU and the only study, to date, with the potential to compare the ageing process in people with intellectual disability with the general population (TILDA). The recipient of the inaugural Health Research Board 2019 Impact Award, Prof McCarron's research excellence and translational activities have been recognised as exemplary. Her sustained efforts in including people with intellectual disabilities in all aspects of research was instrumental in securing an institutional Public, Patient Involvement award from the Health Research Board and Irish Research Council for Trinity College. Leading a research team focused upon ageing, intellectual disability, dementia, end of life and palliative care, Professor McCarron's work is at the forefront of addressing health and care inequities. Funded by the Health Research Board, Irish Hospice Foundation, The Atlantic Philanthropies, Department of Health, Irish Research Council, National Disability Authority, EIT Health and others, Professor McCarron's areas of focus are: Longitudinal epidemiological studies tracking the key determinants of health and wellbeing of adults with an intellectual Disability as they age. . Develop interventions models targeted at preventing secondary disability and improving quality of life and longevity for people with ID. . Longitudinal studies tracking over 20+ years the incidence, prevalence and risk factors associated with dementia in people with Down syndrome. . Working with relevant agencies to establish the first National Memory Clinic for people with ID with satellite services throughout the country with a focus on building capacity for assessment of symptoms of dementia and the standardization of assessment and diagnostic protocols. . Using a concerted and collaborative approach develop the infrastructure and networks required to establish and run large scale primary and secondary clinical trials. Work with international collaborators and the Global Brain Health Institute (GBHI) to develop and validate clinical trials outcome measures, and to develop pre dementia disease models by accumulating clinical and biomarker data with a focus on disease prevention and treatment in people with Down syndrome. . Work with people with ID and relevant agencies and policy makers to develop post diagnostic supports for people with ID and dementia and their caregivers and assess cost and quality of life issues in dementia care and end of life care. . Extending palliative care to persons with advanced and terminal dementia and other non-malignancies . Award-winning approaches to environmental design for those ageing with dementia;