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Professor Mary Mc Carron

Professor of Ageing & Intellectual Disab (School of Nursing & Midwifery)


Mary McCarron, PhD RNID, RGN, BNS. F.T.C.D is Dean of the Faculty of Health Sciences, and Chair of Ageing and Intellectual Disability at Trinity College Dublin. Since joining Trinity College in 2002 Professor McCarron has held many senior leadership roles including, Director of Research and Head of the School of Nursing and Midwifery which is now one of the largest Schools in the University and ranked 31st in the World 2016. With excess of 1400 students and over 100 staff this school and has a strong research programme with 18 undergraduate and postgraduate programmes. In 2011 Professor McCarron was elected Dean of the Faculty of Health Sciences, with responsibility for the School of Nursing and Midwifery, School of Pharmacy and Pharmaceutical Sciences, School of Dental Sciences, Medicine, with a student body in excess of 4,000 and a staff of 650. She is a member of the Senior Executive Management team of the University. A leader in multidisciplinary health sciences, Professor McCarron is a committed ageing research leader at Trinity College and an international expert in the fields of intellectual disability, ageing, dementia, and palliative care. Professor McCarron is the founder and Principal Investigator for the first ever Longitudinal Comparative Study on Ageing in Persons with Intellectual Disability (IDS-TILDA) to be conducted in Ireland or internationally. This study is a supplement to The Irish Longitudinal Study on Ageing (TILDA). With its nationally representative sample, huge support from people with ID, their families and providers, and opportunities for comparisons with the general population, IDS-TILDA increases understanding how lives and chronic conditions change over time and provides insights on key issues at end of life. Professor McCarron's innovative and inclusive approaches are internationally recognized as an exemplar for ensuring meaningful involvement of persons with disability in the research process. With extensive experience in working in the area of dementia in people with Down syndrome Professor McCarron has led large longitudinal cohort studies spanning over 25 years. Her special interest is on the early detection and presentation of dementia, and in the development of humane approaches to care and support. Her award winning approaches on environmental design and technology innovations are sustaining and improving quality of life for people across the continuum of dementia. She has been a key advisor of ageing and policy issues to various governmental and other groups at a National and International level. The emerging IDS-TILDA data is already informing needed policy responses to develop human and appropriate services for this increasingly at risk group. She has been successful in obtaining over €10,000,000 in research funding, as PI or collaborator, and holds/has held grants from a variety of National International sources such as the Department of Health, Health Research Board, National Disability Authority, All Ireland Institute of Hospice and Palliative Care, Atlantic Philanthropies and Horizon 2020. Professor McCarron is an active member of the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD), she plays a critical leadership role in EngAGE, the Trinity College Dublin consortium of over 140 multi-disciplinary researchers on ageing issues. In 2010 in conjunction with Professor Heleen Evenhuis, Professor McCarron led the Development of a PhD Exchange Programme between the School of Nursing and Midwifery at Trinity College and the Department of Intellectual Disability Medicine, Erasmus Medical Centre, Rotterdam, Netherlands. She holds a research Professorship at the Centre for Excellence in Ageing & Community Wellness at the University at Albany NY. Her work is widely published.
  Aged care nursing   Ageing & Intellectual Disability - Changing Service Needs   Ageing & Intellectual Disability Issues   Ageing, Health and Intellectual Disability   Dementia in people with Down's syndrome   Mental health nursing   Palliative Care and Dementia   Palliative care nursing   People with Down Syndrome & Alzheimer's Disease
 National PPI Network 2021
 Dementia Trials Ireland
 Including best practices and the voices of experience in developing post-diagnostic dementia support guidelines for people with an intellectual disability
 MOOC
 Get Wise About Your Health

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Details Date
Stewarts Care (Appointed to board February 2021) February 2021 - Present
Peamount Hospital (Appointed to board December 2018) December 2018 - Present
Member of the National Steering Committee for the National Dementia Office, HSE 2017 - Present
Advising the National Federation of Voluntary Bodies Working Group on Health Outcomes for Older Adults with Intellectual Disabilities 2017 - Present
Appointed by the Minister for Health to the Steering Committee of the National Trauma Strategy 2015
Dental Hospital (The Minister for Health appointed the Board in June 2015) Dental Board Meeting Performance and Succession Committee Meeting (Chair) June 2015 - Present
Board member of DOCTRID 2015 - Present
Language Skill Reading Skill Writing Skill Speaking
English Fluent Fluent Fluent
Details Date From Date To
Member, The UK-Irish Consortium for ageing well with a lifelong disability: Priorities, perspectives and opportunities 2021 Present
Member, T21RS COVID-19 Impact group 2021 Present
Member, Independent Scientific and Ethics Advisory Board - Gene overdosage and comorbidities during the early lifetime in Down Syndrome (EU Research Project) 2020 Present
Member, Irish Gerontology 2020 Present
Member, Trisomy 21 Research Society 2019 Present
Member, National Steering Committee on Open Science, Health Research Board 2018 Present
Member and founder, National Federation Working Group on Health Outcomes for Older People with Intellectual Disability 2018 Present
Member, Steering Committee, National Dementia Office 2016 Present
Member, Trinity EngAGE, Trinity College Dublin 2010 Present
Member, HSE National Steering Group on Dementia, National Federation of Voluntary Bodies 2008 Present
Member, TILDA Steering Committee, Trinity College Dublin 2006 Present
Member, European Association of Palliative Care Taskforce on Palliative Care/End of life Care for People with Intellectual Disabilities 2005 Present
Member, International Down Syndrome Special Interest Group 2004 Present
Member, Special Interest Group (SIRG) on Aging and of the Nursing Special Interest Group 2000 Present
Advisor, Ageing related issues in persons with Intellectual Disability, Inclusion Ireland 2000 Present
Member, International Association for the Scientific Study of Intellectual Disability (IASSID) 2000 Present
Member, National Steering Committee, National Dementia Office, Health Service Executive (HSE) 2017 2018
Member, National Working Group on Extending Palliative Care to Persons with Advanced Dementia 2008
Member, Research Committee, National Federation of Voluntary Bodies 2008
External Member, Residential Care Standards for Older People by the Health Information Quality Authority (HIQA), St. Patrick's Hospital Cashel 2008
Member, Professional Advisory Group, Alzheimer's Europe Conference 2005 2004 2005
Member, Strategic Planning Group on Older People with Disabilities 2000 2004
Chair, 2003 Roundtable Session on International Service Delivery for Persons with Intellectual Disability and Dementia, Volos, Greece 2003 2003
Guest Reviewer - Irish Journal of Psychological Medicine, Journal of Intellectual Disability Research & American Journal of Mental Retardation
Exploring the intellectual disability data landscape for policy and service directions: An Irish perspective in, editor(s) i ka, J. & Beadle-Brown, J. , The Development, Conceptualisation and Implementation of Quality in Disability Support Services, Prague, Karolinum Press, 2021, [O'Donnovan, M-A., Craig, S., McCallion, P., McCarron, M. & Byrne, E.], Book Chapter, PUBLISHED  URL
The emergence of aging with long-term disability populations in, editor(s)M. Putnam, & C. Bigby (Eds.) , Handbook on Ageing with Disability, London, Taylor & Francis, 2021, [McCallion, P., Ferretti, L.A., & McCarron, M. ], Book Chapter, IN_PRESS
Health and wellness among persons ageing with intellectual disability in, editor(s)M. Putnam, & C. Bigby (Eds.) , Handbook on Ageing with Disability, London, Taylor & Francis, 2021, [McCausland, D., McCallion, P., & McCarron, M. ], Book Chapter, PUBLISHED
Responding to Changing Workforce Realities: One Profession's Experience in, editor(s)Putnam, & C. Bigby (Eds.), , Handbook on Ageing with Disability, London, Taylor & Francis, 2021, [Sheerin, F., McCallion, P. & McCarron, M. ], Book Chapter, PUBLISHED  DOI
Health and wellness among persons ageing with intellectual disability in, editor(s)M. Putnam, C. Bigby , Handbook on Aging with Disability, Routledge, 2021, [McCausland, D.; McCallion, P.; McCarron, M.], Book Chapter, PUBLISHED
Marianne Fallon, Eimear McGlinchey, Philip McCallion, Mary McCarron, Developing A Biopsychosocial Model of Cognitive Decline in People Ageing with Intellectual Disability, IASSIDD Virtual 2021, Amsterdam, the Netherlands, 6-8th July 2021, 2021, Conference Paper, PUBLISHED  URL
Donohoe, N., McCarron, M., McCallion, P. and Burke, E., A novel approach to engaging people with intellectual disability as contributors in research, IASSIDD 6th European Congress, Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 2021, IASSIDD, Invited Talk, PUBLISHED  DOI  URL
Maguire, E., Mulryan, N., McCallion, P. & McCarron, Autism Spectrum Disorder in Older Adults with Intellectual Disability - A Scoping Review, Irish Journal of Psychological Medicine , 2021, Journal Article, ACCEPTED
McCarron, M., McCausland, D., Luus, R., Allen, A., Sheerin, F., Burke, E., McGlinchey, E., Flannery, F. & McCallion, P., The impact of coronavirus disease 2019 (COVID-19) on older adults with an intellectual disability during the first wave of the pandemic in Ireland, HRB Open Research, 4, (93), 2021, Journal Article, PUBLISHED  DOI
McCarron, M., Allen, A., McCausland, D., Haigh, M., Luus, R., Bavussantakath, F.R., Sheerin, F., Mulryan, N., Burke, E., McGlinchey, E., Flannery, F. & McCallion, P., The impact of COVID-19 on people ageing with an intellectual disability in Ireland: Protocol for a follow-up survey., HRB Open Research, 4, (95), 2021, Journal Article, PUBLISHED  DOI
  

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McCarron, M., Physical Health issues for older adults with an Intellectual Disability: Evidence form the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing(IDS TILDA) , Physical health in people with intellectual disability: Current perspectives and future directions, Virtual, 25th May, 2021, The Royal Society of Medicine, Invited Talk, PRESENTED
McCarron, M., COVID-19 and Older Adults with an Intellectual Disability: A TCAID Perspective, SJOG: Online Research Study Day, Online, 18th November, 2020, SJOG, Invited Talk, PUBLISHED
McCarron, M., Responding to Early onset Dementia in Persons with Down Syndrome: Award-winning Approaches to Assessment and Care, CLE Wednesdays; Clinical and Lived Experiences (GBHI), Online, 28th October, 2020, GBHI, Invited Talk, PUBLISHED
McCarron, M., Ageing and Intellectual Disability: What it may mean for some people in retirement, Retirement Planning Council of Ireland, Online, 14th October, 2020, Invited Talk, PUBLISHED
McCarron, M., Down syndrome and Dementia - Inclusion and Equity, Dementia Care Conference, Online, 29th September, 2020, Invited Talk, PUBLISHED
McCarron, M., Women in Science - Building an enabled world to foster equality, Royal College of Physicians of Ireland, Kildare Street, 9th March, 2020, Invited Talk, PUBLISHED
McCarron, M., The Irish Longitudinal Comparative Study on Ageing in Persons with an Intellectual Disability (IDS TILDA): Major Findings and Implications for Care, Camphill Community, Kilcullen, 29th February, 2020, Invited Talk, PUBLISHED
McCarron, M., Understanding key issues in ageing for people with an intellectual disability:Ten years of data from IDS-TILDA, COPE Foundation Services, Cork, 25th February, 2020, Invited Talk, PRESENTED
McCarron, M., The Irish Longitudinal Comparative Study on Ageing in Persons with an Intellectual Disability (IDS TILDA): Major Findings and Implications for Care , Trinity College Dublin School of Nursing and Midwifery, 18th February, 2020, Invited Talk, PRESENTED
McCarron, M., Building a Successful Career in the Academy: Navigating Multiple Priorities , Duke University School of Nursing, 6th February, 2020, Invited Talk, PRESENTED

  

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Award Date
Fellow, American Academy of Nursing 2020
Winner, Inaugural Impact Award, Health Research Board 2019
Chair, Ageing and Intellectual Disability 2014
Trinity Fellow April 2011
Clinical Fellowship in Nursing and Midwifery by the Health Research Board 1999
Nurse of the Year 1993
An international expert in the field of ageing and intellectual disability, Professor Mary McCarron is the founder and Principal Investigator of the first longitudinal study on ageing in people with an intellectual disability (IDS-TILDA) to be conducted within the EU and the only study, to date, with the potential to compare the ageing process in people with intellectual disability with the general population (TILDA). The recipient of the inaugural Health Research Board 2019 Impact Award, Prof McCarron's research excellence and translational activities have been recognised as exemplary. Her sustained efforts in including people with intellectual disabilities in all aspects of research was instrumental in securing an institutional Public, Patient Involvement award from the Health Research Board and Irish Research Council for Trinity College. Leading a research team focused upon ageing, intellectual disability, dementia, end of life and palliative care, Professor McCarron's work is at the forefront of addressing health and care inequities. Funded by the Health Research Board, Irish Hospice Foundation, The Atlantic Philanthropies, Department of Health, Irish Research Council, National Disability Authority, EIT Health and others, Professor McCarron's areas of focus are: Longitudinal epidemiological studies tracking the key determinants of health and wellbeing of adults with an intellectual Disability as they age. . Develop interventions models targeted at preventing secondary disability and improving quality of life and longevity for people with ID. . Longitudinal studies tracking over 20+ years the incidence, prevalence and risk factors associated with dementia in people with Down syndrome. . Working with relevant agencies to establish the first National Memory Clinic for people with ID with satellite services throughout the country with a focus on building capacity for assessment of symptoms of dementia and the standardization of assessment and diagnostic protocols. . Using a concerted and collaborative approach develop the infrastructure and networks required to establish and run large scale primary and secondary clinical trials. Work with international collaborators and the Global Brain Health Institute (GBHI) to develop and validate clinical trials outcome measures, and to develop pre dementia disease models by accumulating clinical and biomarker data with a focus on disease prevention and treatment in people with Down syndrome. . Work with people with ID and relevant agencies and policy makers to develop post diagnostic supports for people with ID and dementia and their caregivers and assess cost and quality of life issues in dementia care and end of life care. . Extending palliative care to persons with advanced and terminal dementia and other non-malignancies . Award-winning approaches to environmental design for those ageing with dementia;