| Project title |
A collaborative initiative to implement person-centred practice in residential care settings for children and adults with intellectual disability. |
| Summary |
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| Funding Agency |
Stewarts Hospital |
| Programme |
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| Type of Project |
Funded Research Project |
| Date from |
October 2011 |
| Date to |
February 2013 |
| Person Months |
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| Project title |
What are the respite needs and experiences of family's caring for a child with a life-limiting condition requiring palliative care? |
| Summary |
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| Funding Agency |
Health Research Board |
| Programme |
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| Type of Project |
Funded Research Project |
| Date from |
October 2010 |
| Date to |
September 2013 |
| Person Months |
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| Project title |
An Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing TILDA |
| Summary |
Background & Aim: In Ireland and elsewhere there is for the first time a sizeable and growing population of older persons with intellectual disabilities (ID). This is an incredible success but also a tremendous challenge; we know little about their ageing and there is much concern that mortality is higher, health problems are greater, access to services and health promotion is poorer and quality of life is often compromised. A comprehensive longitudinal study of ageing (TILDA) is about to begin in Ireland. Use of the electoral register as a sampling frame will unintentionally exclude many people with ID. Use of the National Intellectual Disability Database will offer an historic and critical opportunity to create a supplemental longitudinal follow-up of ageing in persons with ID.
Approach:
Sample: There will be two samples; (1) a stratified convenience pilot sample of 50 persons with ID aged 40-70 years, (2) approximately 800 persons over age 40 randomly selected from the HRB ID database with an over-sample of those over 55 and those 40-49 living at home or independently.
Measures: Measures will address health, cognitive status, activities of daily living, living situations, social life and overall quality of life. Measures will be comparable to these being used in the larger TILDA study and yet will address unique issues.
Analysis: For the pilot sample analysis will focus upon usability of instruments and instrument reliability and validity issues. When the finalized protocol is then administered to the first wave sample of the longitudinal study, a descriptive statistical picture of the life experiences of adult persons of ID will be developed as well as comparisons between important subgroups and with the general population findings of TILDA.
Implications: The study will provide the first comprehensive picture of ageing in persons with ID and prepare for longitudinal investigation of that ageing. |
| Funding Agency |
Health Research Board |
| Programme |
Research |
| Type of Project |
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| Date from |
September 2008 |
| Date to |
October 2011 |
| Person Months |
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| Project title |
Evaluation of the Programme to support Palliative and Hospice Care in the Republic of Ireland |
| Summary |
Evaluation of the Programme to support Palliative and Hospice Care in the Republic of Ireland |
| Funding Agency |
Atlantic Philanthropies |
| Programme |
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| Type of Project |
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| Date from |
March 2010 |
| Date to |
March 2011 |
| Person Months |
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| Project title |
The Post-Caring Experience: An Assessment of the Needs of former Family Carers. |
| Summary |
The Post-Caring Experience: An Assessment of the Needs of former Family Carers. |
| Funding Agency |
IRCHSS and Care Alliance |
| Programme |
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| Type of Project |
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| Date from |
Dec 2009 |
| Date to |
Dec 2010 |
| Person Months |
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| More Research Projects>>> |
| Nolan, L., McCarron, M., McCallion, P., & Murphy-Lawless, J., Perceptions of Stigma in Dementia: An exploratory study, Dublin, The Alzheimer Society of Ireland, September, 2006 |
| McCarron, M., Assessment of Dementia in Persons with Intellectual Disability: Challenges and Opportunities, The Frontline of Learning Disability, 64, (Winter), 2005, p24 - 27 |
| McCarron, M., McCallion, P., & McLaughlin, M., Overview of dementia issues in intellectual disability , The Frontline of Learning Disability, 64, (Winter), 2005, p14 - 15 |
| McCallion, P., & McCarron, M. , Environmental modification and dementia: key recommendations., The Frontline of Learning Disability, 64, (Winter), 2005, p28 - 29 |
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Contact:helpdesk@tcd.ie Last Updated:12-FEB-2012 |