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Professor Mary Mc Carron

Professor of Ageing & Intellectual Disab (School of Nursing & Midwifery)

Dean of Health Sciences (Fac Office - Faculty of Health Sciences)

Mary McCarron, PhD RNID, RGN, BNS. F.T.C.D is Dean of the Faculty of Health Sciences, and Chair of Ageing and Intellectual Disability at Trinity College Dublin. Since joining Trinity College in 2002 Professor McCarron has held many senior leadership roles including, Director of Research and Head of the School of Nursing and Midwifery which is now one of the largest Schools in the University and ranked 31st in the World 2016. With excess of 1400 students and over 100 staff this school and has a strong research programme with 18 undergraduate and postgraduate programmes. In 2011 Professor McCarron was elected Dean of the Faculty of Health Sciences, with responsibility for the School of Nursing and Midwifery, School of Pharmacy and Pharmaceutical Sciences, School of Dental Sciences, Medicine, with a student body in excess of 4,000 and a staff of 650. She is a member of the Senior Executive Management team of the University. A leader in multidisciplinary health sciences, Professor McCarron is a committed ageing research leader at Trinity College and an international expert in the fields of intellectual disability, ageing, dementia, and palliative care. Professor McCarron is the founder and Principal Investigator for the first ever Longitudinal Comparative Study on Ageing in Persons with Intellectual Disability (IDS-TILDA) to be conducted in Ireland or internationally. This study is a supplement to The Irish Longitudinal Study on Ageing (TILDA). With its nationally representative sample, huge support from people with ID, their families and providers, and opportunities for comparisons with the general population, IDS-TILDA increases understanding how lives and chronic conditions change over time and provides insights on key issues at end of life. Professor McCarron's innovative and inclusive approaches are internationally recognized as an exemplar for ensuring meaningful involvement of persons with disability in the research process. With extensive experience in working in the area of dementia in people with Down syndrome Professor McCarron has led large longitudinal cohort studies spanning over 25 years. Her special interest is on the early detection and presentation of dementia, and in the development of humane approaches to care and support. Her award winning approaches on environmental design and technology innovations are sustaining and improving quality of life for people across the continuum of dementia. She has been a key advisor of ageing and policy issues to various governmental and other groups at a National and International level. The emerging IDS-TILDA data is already informing needed policy responses to develop human and appropriate services for this increasingly at risk group. She has been successful in obtaining over €10,000,000 in research funding, as PI or collaborator, and holds/has held grants from a variety of National International sources such as the Department of Health, Health Research Board, National Disability Authority, All Ireland Institute of Hospice and Palliative Care, Atlantic Philanthropies and Horizon 2020. Professor McCarron is an active member of the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD), she plays a critical leadership role in EngAGE, the Trinity College Dublin consortium of over 140 multi-disciplinary researchers on ageing issues. In 2010 in conjunction with Professor Heleen Evenhuis, Professor McCarron led the Development of a PhD Exchange Programme between the School of Nursing and Midwifery at Trinity College and the Department of Intellectual Disability Medicine, Erasmus Medical Centre, Rotterdam, Netherlands. She holds a research Professorship at the Centre for Excellence in Ageing & Community Wellness at the University at Albany NY. Her work is widely published.
  Aged care nursing   Ageing & Intellectual Disability - Changing Service Needs   Ageing & Intellectual Disability Issues   Ageing, Health and Intellectual Disability   Dementia in people with Down's syndrome   Mental health nursing   Palliative Care and Dementia   Palliative care nursing   People with Down Syndrome & Alzheimer's Disease
 Health Indicators Study
 ProACT (Intergrated Technology Ecosystems for ProACTive Patient Centred Care)
 WayFinding
 ASSISTID (Assistive Technologies for People with Intellectual Disability and Autism
 Wave III An Intellectual Disability Supplement to the Irish Longitundinal Study on Ageing TILDA. Wave III

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Details Date From Date To
Member of the National Steering Committee for the National Dementia Office HSE, Project is to develop a Dementia Post-Diagnostic Support Pathway 21st June 2017 21st June 2018
Member and active participant in Trinity Consortium on Aging.
International Association for the Scientific Study of Intellectual Disability (IASSID). Member of the Special Interest Group (SIRG) on Aging and of the Nursing Special Interest Group. Chair for the 2003 Roundtable Session on International Service Delivery for Persons with Intellectual Disability and Dementia. Volos, Greece.
International Association for the Scientific Study of Intellectual Disability (IASSID) (member)
Member of the Special Interest Group (SIRG) on Aging and of the Nursing Special Interest Group.
Chair for the 2003 Roundtable Session on International Service Delivery for Persons with Intellectual Disability and Dementia. Volos, Greece.
Guest Reviewer, Irish Journal of Psychological Medicine , Journal of Intellectual Disability Research American Journal of Mental Retardation.
International Down Syndrome Special Interest Group (member)
Professional Advisory Group Alzheimer's Europe Conference 2005 (member)
Inclusion Ireland (Advisor on Ageing related issues in persons with Intellectual Disability)
Strategic Planning Group on Older People with Disabilities (member) Report submitted to the Department of Health and Children 2004.
National Federation of Voluntary bodies representative on the National Steering Group on Dementia set up by the Health Service Executive (HSE) 2008
Member of the National Working Group on Extending Palliative Care to Persons with Advanced Dementia set up the Irish Hospice Foundation. 2008
Member of the National Federation of Voluntary bodies Research Committee 2008
External Member on the Residential Care Standards for Older People by the Health Information Quality Authority (HIQA) at St. Patricks Hospital Cashel. 2008
Expert Panel European Association of Palliative Care Taskforce on Palliative Care/End of life Care for People with Intellectual Disabilities 2012 present
O'Connell J., O'Dwyer, M., Burke, E; Henman, M., McCarron, M., McCallion, P;, Drug Burden Index and Physical Function Measures in Older Adults with Intellectual Disabilities, ESCP International Symposium , Germany, 9th - 11th October, 2017, Conference Paper, ACCEPTED
Burke, E., McCarron, M, IDS-TILDA, An overview from the beginning, Research Study Day, Dublin, January, 2017, St John of God, Invited Talk, PRESENTED
Burke, E., McCarron, M, Ageing and the changing needs of people with an intellectual disability, International Occupational Therapy Group from Singapore, St James Hospital, February, 2017, Invited Talk, PRESENTED
O'Donovan, M-A., Byrne, E., McCallion, P., McCarron, M, Measuring choice for adults with an intellectual disability - a factor analysis of the adapted daily choice inventory scale, Journal of Intellectual Disability Research, 1, (1), 2017, p1 - 14, Journal Article, PUBLISHED  URL
McCausland D., McCallion, P., Brennan, D., McCarron, M, Interpersonal relationships of older adults with an intellectual disability in Ireland, Journal of Applied Research in Intellectual Disabilities, 2017, p1 - 14, Journal Article, PUBLISHED  DOI
O'Dwyer, M., Peklar, J., Mulryan, N., McCallion, P., McCarron, M., & Henman, M. C., Prevalence, patterns and factors associated with psychotropic use in older adults with intellectual disabilities in Ireland, Journal of Intellectual Disability Research, 2017, Notes: [Version of Record online: 21 JUN 2017], Journal Article, PUBLISHED  DOI
Brennan, D., Murphy, R., McCallion, P., McCarron, M, "What's going to happen when we're gone?" Family caregiving capacity for older people with an intellectual disability in Ireland, Journal of Applied Research in Intellectual Disabilities, 2017, Journal Article, PUBLISHED  DOI
Peklar, J., Kos, M., O'Dwyer, M., McCarron, M., McCallion, P., Kenny, R., Henman, M, Medication and supplement use in older, PLOS , (1), 2017, p1 - 15, Journal Article, PUBLISHED  DOI
Peklar, J., Kos, M., O'Dwyer, M.,McCarron, M., McCallion, P., Kenny, R.A., Henman, M.C., Medication and supplement use in older people with and without intellectual disability: An observational, cross-sectional study, PloS one, 2017, Journal Article, PUBLISHED  TARA - Full Text  DOI  URL  Other
Burke, E., McCarron, M.,, Physical health and older adults with intellectual disabilities, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017, Oral Presentation, PUBLISHED
  

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McCarron, M; Burke, E;, Engaged Research Report, Mansion House Dublin, 13th January, 2017, Campus Engage, Invited Talk, PRESENTED
McCarron, M, Health conditions associated with ageing in people with Down syndrome, New Horizons in Down's Syndrome, Kildare Street, Dublin, 1st February, 2017, Royal College Physicians of Ireland, Invited Talk, PRESENTED
McCarron, M, Last days of life conference, Cardiff, 1st March, 2017, Invited Talk, PRESENTED
McCarron, M, NI Conference on Dementia, Belfast, 8th March, 2017, Alzheimers Society, Invited Talk, PRESENTED
McCarron, M., Burke, E, To ensure 'nothing about us without us', Engaged Research: Society& Higher Education Working Together to Address Grand Societal Challenges, Mansion House, Dublin, 13th January, 2017, Irish Research Council & Campus Engage, Invited Talk, PRESENTED
McCarron, M, Pushing the Boundaries in Research and Service Transformation, Clinical Leadership Programme for staff from ID services forum day , Dublin, 31st May, 2017, Leadership and Innovation Centre for Nursing and Midwifery, Invited Talk, PUBLISHED
McCarron, M, Alzheimer's Dementia and Down syndrome: Awareness, Hope and Service Transformation, Session 9 GBHI Conference, Barcelona, 2017, Invited Talk, PRESENTED
McCarron, M, The needs of people living with Down's Syndrome and dementia, Meeting of The All-Party Oireachtas Group on Dementia, Leinster House , 15th June, 2017, The Alzheimer Society of Ireland, Invited Talk, ACCEPTED
McCarron, M, Dementia in People with Down syndrome, All-Party Oireachtas Group on Dementia, Kildare Street, 15th June , 2017, Dementia Committee, Invited Talk, PRESENTED
McCarron, M;, IDS-TILDA Ageing in Intellectual Disability, Faculty of Psychiatry of Intellectual Disability Annual Conference , Dublin, 6th October, 2017, Royal College of Psychiatrists, Invited Talk, ACCEPTED

  

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Award Date
Chair in Ageing and Intellectual Disability 2014
Elected as Trinity Fellow 11th April 2011
Clinical Fellowship in Nursing and Midwifery by the Health Research Board 1999
An international expert in the field of ageing and intellectual disability, Professor McCarron is the Principal Investigator for the first ever Longitudinal study on Ageing in Persons with Intellectual Disability (IDS-TILDA) to be conducted in Ireland or in the EU and the only study to date with the potential to compare the ageing process in people with intellectual disability with other groups. This study is a Supplement to The Irish Longitudinal study on Ageing (TILDA). Leading a research team focused upon ageing, dementia end of life and palliative care Professor McCarron's work, funded by the Health Research Board, the Irish Hospice Foundation, The Atlantic Philanthropies nationally known service providers and other funders has been at the forefront of: - Longitudinally following the incidence of dementia symptoms in a population of persons with Down syndrome - Addressing cost and quality of life issues in dementia care and end of life care considerations for persons with intellectual disabilities and dementia - Award winning approaches to environmental Design and dementia - Extending Palliative to persons with advanced and terminal dementia and other non-malignancies such as COPD, - Assessing the policy impact of funded interventions - Building capacity for assessment of symptoms of dementia including the development of specialist memory clinic services - Supporting a randomized trial of Vitamin E as a protective agent for persons with Down syndrome - Building evidence-based day-to-day care management and service re-design practices. Her work is widely published.