Skip to main content

Trinity College Dublin, The University of Dublin

Menu Search


Trinity College Dublin By using this website you consent to the use of cookies in accordance with the Trinity cookie policy. For more information on cookies see our cookie policy.

      
Profile Photo

Professor Mary Mc Carron

Professor of Ageing & Intellectual Disab (School of Nursing & Midwifery)

Dean of Health Sciences (Fac Office - Faculty of Health Sciences)

Mary McCarron, PhD RNID, RGN, BNS. F.T.C.D is Dean of the Faculty of Health Sciences, and Chair of Ageing and Intellectual Disability at Trinity College Dublin. Since joining Trinity College in 2002 Professor McCarron has held many senior leadership roles including, Director of Research and Head of the School of Nursing and Midwifery which is now one of the largest Schools in the University and ranked 31st in the World 2016. With excess of 1400 students and over 100 staff this school and has a strong research programme with 18 undergraduate and postgraduate programmes. In 2011 Professor McCarron was elected Dean of the Faculty of Health Sciences, with responsibility for the School of Nursing and Midwifery, School of Pharmacy and Pharmaceutical Sciences, School of Dental Sciences, Medicine, with a student body in excess of 4,000 and a staff of 650. She is a member of the Senior Executive Management team of the University. A leader in multidisciplinary health sciences, Professor McCarron is a committed ageing research leader at Trinity College and an international expert in the fields of intellectual disability, ageing, dementia, and palliative care. Professor McCarron is the founder and Principal Investigator for the first ever Longitudinal Comparative Study on Ageing in Persons with Intellectual Disability (IDS-TILDA) to be conducted in Ireland or internationally. This study is a supplement to The Irish Longitudinal Study on Ageing (TILDA). With its nationally representative sample, huge support from people with ID, their families and providers, and opportunities for comparisons with the general population, IDS-TILDA increases understanding how lives and chronic conditions change over time and provides insights on key issues at end of life. Professor McCarron's innovative and inclusive approaches are internationally recognized as an exemplar for ensuring meaningful involvement of persons with disability in the research process. With extensive experience in working in the area of dementia in people with Down syndrome Professor McCarron has led large longitudinal cohort studies spanning over 25 years. Her special interest is on the early detection and presentation of dementia, and in the development of humane approaches to care and support. Her award winning approaches on environmental design and technology innovations are sustaining and improving quality of life for people across the continuum of dementia. She has been a key advisor of ageing and policy issues to various governmental and other groups at a National and International level. The emerging IDS-TILDA data is already informing needed policy responses to develop human and appropriate services for this increasingly at risk group. She has been successful in obtaining over €10,000,000 in research funding, as PI or collaborator, and holds/has held grants from a variety of National International sources such as the Department of Health, Health Research Board, National Disability Authority, All Ireland Institute of Hospice and Palliative Care, Atlantic Philanthropies and Horizon 2020. Professor McCarron is an active member of the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD), she plays a critical leadership role in EngAGE, the Trinity College Dublin consortium of over 140 multi-disciplinary researchers on ageing issues. In 2010 in conjunction with Professor Heleen Evenhuis, Professor McCarron led the Development of a PhD Exchange Programme between the School of Nursing and Midwifery at Trinity College and the Department of Intellectual Disability Medicine, Erasmus Medical Centre, Rotterdam, Netherlands. She holds a research Professorship at the Centre for Excellence in Ageing & Community Wellness at the University at Albany NY. Her work is widely published.
  Aged care nursing   Ageing & Intellectual Disability - Changing Service Needs   Ageing & Intellectual Disability Issues   Ageing, Health and Intellectual Disability   Dementia in people with Down's syndrome   Mental health nursing   Palliative Care and Dementia   Palliative care nursing   People with Down Syndrome & Alzheimer's Disease
 KNOWLEDGE EXCHANGE AND DISSEMINATION SCHEME 2017 KEDS-2017-021
 Quality of life outcomes and cost changes associated with providing support to people with intellectual disability who move form congregared settings to community living arrangements
 St Ita's moving to community Settings
 P PALS
 National Indicators of Positive Ageing for People with Intellectual Disabilty

Page 1 of 9
Language Skill Reading Skill Writing Skill Speaking
English Fluent Fluent Fluent
Details Date From Date To
Member of the National Steering Committee for the National Dementia Office HSE, Project is to develop a Dementia Post-Diagnostic Support Pathway 21st June 2017 21st June 2018
Member and active participant in Trinity Consortium on Aging.
International Association for the Scientific Study of Intellectual Disability (IASSID). Member of the Special Interest Group (SIRG) on Aging and of the Nursing Special Interest Group. Chair for the 2003 Roundtable Session on International Service Delivery for Persons with Intellectual Disability and Dementia. Volos, Greece.
International Association for the Scientific Study of Intellectual Disability (IASSID) (member)
Member of the Special Interest Group (SIRG) on Aging and of the Nursing Special Interest Group.
Chair for the 2003 Roundtable Session on International Service Delivery for Persons with Intellectual Disability and Dementia. Volos, Greece.
Guest Reviewer, Irish Journal of Psychological Medicine , Journal of Intellectual Disability Research American Journal of Mental Retardation.
International Down Syndrome Special Interest Group (member)
Professional Advisory Group Alzheimer's Europe Conference 2005 (member)
Inclusion Ireland (Advisor on Ageing related issues in persons with Intellectual Disability)
Strategic Planning Group on Older People with Disabilities (member) Report submitted to the Department of Health and Children 2004.
National Federation of Voluntary bodies representative on the National Steering Group on Dementia set up by the Health Service Executive (HSE) 2008
Member of the National Working Group on Extending Palliative Care to Persons with Advanced Dementia set up the Irish Hospice Foundation. 2008
Member of the National Federation of Voluntary bodies Research Committee 2008
External Member on the Residential Care Standards for Older People by the Health Information Quality Authority (HIQA) at St. Patricks Hospital Cashel. 2008
Expert Panel European Association of Palliative Care Taskforce on Palliative Care/End of life Care for People with Intellectual Disabilities 2012 present
Choice as people age with intellectual disability - an Irish perspective in, editor(s)Roger J. Stancliffe, Michael L. Wehmeyer, Karrie A. Shogren, Brian H. Abery, , CHOICE, PREFERENCE, AND DISABILITY: PROMOTING SELF-DETERMINATION ACROSS THE LIFESPAN, Springer Books, 2018, [O'Donovan, M-A., McCausland, D., McCallion, P., McCarron, M], Book Chapter, ACCEPTED
Bowman, S., McCarron, M, Advancing Public & Patient Involvement in Health Research, HRB-IRC PPI Ignite Programme, TBSI, 12th January, 2018, Invited Talk, PRESENTED
O'Dwyer, M., Henman, M., McCarron, M., McCallion, P., Burke, E., Carroll, R., O'Dwyer, M O'Connell, J., , Prevalence and Patterns of antiepileptic medication use in the treatment of epilepsy in older adults with Intellectual Disabilities, Journal of Intellectual Disability Research , 2018, Journal Article, PUBLISHED  DOI
Bowman, S., McCarron, M, Developing a Strategic Public Engagament Plan, Sphere Conference, RCSI Dublin, 11th January, 2018, Poster, ACCEPTED
O'Connell J., O'Dwyer, M., Burke, E; Henman, M., McCarron, M., McCallion, P;, Drug Burden Index and Physical Function Measures in Older Adults with Intellectual Disabilities, ESCP International Symposium , Germany, 9th - 11th October, 2017, Conference Paper, ACCEPTED
McCarron, M; Burke, E;, Engaged Research Report, Mansion House Dublin, 13th January, 2017, Campus Engage, Invited Talk, PRESENTED
McCarron, M., Burke, E, To ensure 'nothing about us without us', Engaged Research: Society& Higher Education Working Together to Address Grand Societal Challenges, Mansion House, Dublin, 13th January, 2017, Irish Research Council & Campus Engage, Invited Talk, PRESENTED
Burke, E., McCarron, M, IDS-TILDA, An overview from the beginning, Research Study Day, Dublin, January, 2017, St John of God, Invited Talk, PRESENTED
Burke, E., McCarron, M, Ageing and the changing needs of people with an intellectual disability, International Occupational Therapy Group from Singapore, St James Hospital, February, 2017, Invited Talk, PRESENTED
Brennan D., McCarron, M., McCallion, P.,, Caring Capacity in the Domestic Space: Current and Future Challenge, , Irish Association of Social Workers and Social Care Ireland - National Conference, Our Lady's Hospice, Dublin, September 22nd, 2017, Invited Talk, PRESENTED
  

Page 1 of 40
McCarron, M, Dementia: transforming the journey - prevention, treatment and quality of life., Hilton Hotel, Templepatrick, Co. Antrim, 17th May, 2018, Invited Talk, ACCEPTED
Bowman, S., McCarron, M, HRB-IRC, HRB-IRC PPI Ignite Programme, TBSI, 12th January, 2018, Invited Talk, PRESENTED
McCarron, M, Round Table 1: What can mortality data tell us about health inequalities at end of life? "Older adults who have died across the first 10 years of IDS-TILDA", 5th IASSIDD Europe Congress 2018, Athens Greece, 18 - 20 July, 2018, Invited Talk, SUBMITTED
McCarron, M, Health conditions associated with ageing in people with Down syndrome, New Horizons in Down's Syndrome, Kildare Street, Dublin, 1st February, 2017, Royal College Physicians of Ireland, Invited Talk, PRESENTED
McCarron, M, Dementia, End of Life and People with Intellectual Disabilities, Last days of life conference, Cardiff, 1st March, 2017, Invited Talk, PRESENTED
McCarron, M, NI Conference on Dementia, Belfast, 8th March, 2017, Alzheimers Society, Invited Talk, PRESENTED
McCarron, M, Pushing the Boundaries in Research and Service Transformation, Clinical Leadership Programme for staff from ID services forum day , Dublin, 31st May, 2017, Leadership and Innovation Centre for Nursing and Midwifery, Invited Talk, PRESENTED
McCarron, M, Alzheimer's Dementia and Down syndrome: Awareness, Hope and Service Transformation, Session 9 GBHI Conference, Barcelona, 2017, Invited Talk, PRESENTED
McCarron, M, The needs of people living with Down's Syndrome and dementia, Meeting of The All-Party Oireachtas Group on Dementia, Leinster House , 15th June, 2017, The Alzheimer Society of Ireland, Invited Talk, PRESENTED
McCarron, M, Dementia in People with Down syndrome, All-Party Oireachtas Group on Dementia, Kildare Street, 15th June , 2017, Dementia Committee, Invited Talk, PRESENTED

  

Page 1 of 7
Award Date
Chair in Ageing and Intellectual Disability 2014
Elected as Trinity Fellow 11th April 2011
Clinical Fellowship in Nursing and Midwifery by the Health Research Board 1999
An international expert in the field of ageing and intellectual disability, Professor McCarron is the Principal Investigator for the first ever Longitudinal study on Ageing in Persons with Intellectual Disability (IDS-TILDA) to be conducted in Ireland or in the EU and the only study to date with the potential to compare the ageing process in people with intellectual disability with other groups. This study is a Supplement to The Irish Longitudinal study on Ageing (TILDA). Leading a research team focused upon ageing, dementia end of life and palliative care Professor McCarron's work, funded by the Health Research Board, the Irish Hospice Foundation, The Atlantic Philanthropies nationally known service providers and other funders has been at the forefront of: - Longitudinally following the incidence of dementia symptoms in a population of persons with Down syndrome - Addressing cost and quality of life issues in dementia care and end of life care considerations for persons with intellectual disabilities and dementia - Award winning approaches to environmental Design and dementia - Extending Palliative to persons with advanced and terminal dementia and other non-malignancies such as COPD, - Assessing the policy impact of funded interventions - Building capacity for assessment of symptoms of dementia including the development of specialist memory clinic services - Supporting a randomized trial of Vitamin E as a protective agent for persons with Down syndrome - Building evidence-based day-to-day care management and service re-design practices. Her work is widely published.