Dr. Peter May

Summary

Objectives 1. To adapt the Canadian Nav-Care intervention to a NavCare-EU intervention (WP2) and to compare NavCareEU to care as usual, in terms of its: a. effectiveness on (1) health-related quality of life and well-being of older cancer patients across the continuum of supportive, palliative, survivorship and end-of-life care (primary outcomes); (2) family caregivers' care-related quality of life and well-being, and informal care burden; (3) social support; (4) selfefficacy, patient activation, and coping; (5) use of health and social care services and resources; and (6) relevant professionals' role satisfaction (WP3) b. cost-effectiveness (WP4) c. effects on different subgroups defined by characteristics known to affect health equity and equitable access, i.e., gender, age, socioeconomic status, extent of social support and living situation, and geographical location (rural vs. urban) (WP5) d. effectiveness and cost-effectiveness in different health care systems and care regimes in Europe (WP2-5) 2. To evaluate the implementation processes of the NavCare-EU intervention and the feasibility of its integration into different health care systems and care regimes in Europe, the contextual barriers and facilitators for effective and sustainable implementation, and the mechanisms involved in reaching the outcomes in each country, as perceived by patients, family caregivers, and care providers (WP6) 3. To ensure optimal dissemination, exploitation, communication, and stakeholder engagement, and to achieve societal, scientific, and economic impact during and beyond the project (WP7-8)

Funding Agency

European Commission

Programme

Horizon Europe

Project Type

HORIZON Action Grant Budget-Based

Person Months

60

Summary

This grant aims to support the USC Schaeffer Center to identify critical economic research to advance access and standardization of palliative care in the United States. Dr May is a co-chair of a distinguished interdisciplinary panel.

Funding Agency

Gordon and Betty Moore Foundation

Project Type

Research funding

Summary

This pilot project will extend the HRS- and TILDA-based dynamic microsimulation models to incorporate harmonized measures of cognition, depressive symptoms, functional limitations and nursing home use to allow direct comparison. This project has the following aims: 1. Extend and validate the TILDA-based microsimulation to model new outcomes: cognitive function, depressive behavior, functional limitations and time spent in residential care. 2. Extend and validate the US-FEM to model the depressive behavioral domain of ADRD. 3. Produce population and subpopulation (gender, education, and race) projections, and compare these projections within and between countries. 4. Recommend best practices for projecting cognition, depressive behavior, functional status, and ADRD to guide other researchers using panel studies similar to HRS and TILDA. Scope the potential for novel inclusion of biomarkers and laboratory measures in projections. 5. Use the results as a basis for large-scale international study proposal to project future needs, estimate future health and social care costs, and evaluate the effect of different systems and payment models on care, health and economic outcomes.

Funding Agency

NIA

Programme

Pilot projects

Person Months

2

Summary

More people are living longer, increasing the need for expert care of complex medical illness. The end-of-life phase imposes severe physical and psychological burdens on people with terminal illness and their families. Contemporary health systems are not geared to providing good end-of-life care. Palliative care aims to maximise quality of remaining life. Current availability of palliative care in Ireland depends heavily on which area of the country you live in. Improving palliative and end-of-life care requires good data on current practices. However we currently know little about the end-of-life phase in Ireland: where people die, what health care they use, how family and friends provide unpaid care, and how palliative care shapes these experiences. This project aims to improve knowledge and understanding of these questions. We will access data from multiple government bodies on how people die. We will also use The Irish Longitudinal study on Ageing (TILDA), which since 2009 interviews a nationally representative cohort of people aged over 50 on their life experience, health and health care use. We will combine these data to describe national trends in death and dying; to measure differences in palliative care service by region; and to evaluate how local palliative care provision is associated with important indicators of end-of-life experience, e.g. pain, anxiety, death in preferred place. We will also compare the data currently collected by Department of Health and Health Service Executive against practices in other countries, to identify opportunities for improvement. Our results will improve provision and planning in palliative and end-of-life care by providing for the first time a national picture of how people die in Ireland, by quantifying how palliative care impacts these experiences, and by identifying ways in which services can be better evaluated and provided in future.

Funding Agency

Health Research Board

Programme

SDAP-2019

Person Months

36

Summary

Project Number: 1K23HL144830-01A1 Project Leader: KHANDELWAL, NITA Awardee Organization: UNIVERSITY OF WASHINGTON

Funding Agency

National Heart, Lung, and Blood Institute (United States)

Programme

K23