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Dr. Eimear Mc Glinchey

Assistant Professor (School of Nursing & Midwifery)
CHEMISTRY BUILDING
      
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Dr. Eimear Mc Glinchey

Assistant Professor (School of Nursing & Midwifery)
CHEMISTRY BUILDING


r Eimear McGlinchey is an Assistant Professor in Intellectual Disability in the School of Nursing and Midwifery, and a Senior Atlantic Fellow for Equity in Brain Health at the Global Brain Health Institute. Eimear's background is in Psychology and her primary area of interest is in the promotion and maintenance of brain health in people with an intellectual disability, with particular focus on the area of dementia in people with Down syndrome. Eimear's work in the area of dementia and Down syndrome includes investigating early biomarkers of Alzheimer's disease using neuroimaging, blood- based and cognitive biomarkers and is PI of the PREVENT dementia - DS project. This project is part of a collaborative international study with the Horizon 21 European Down syndrome Consortium. Dr McGlinchey is co-PI on a project that includes the voices of people with an intellectual disability in developing guidelines for post-diagnostic dementia support. Eimear's work is based in the Trinity Centre for Ageing and Intellectual Disability and is research lead with the National Intellectual Disability Memory Service. Her other areas of interest include equity and inclusion as well as accessibility and innovative dissemination. Eimear teaches on the undergraduate and postgraduate programmes in the school and provides supervision to undergraduate, masters and PhD students. She is Program Director for the Ageing Health and Wellbeing in Intellectual Disability MSc, the Dementia MSc, and the Community Health MSc in the School of Nursing and Midwifery. She has a number of publications and has disseminated widely through national and international conferences.
Project Title
 Including the Voices of Experience in Developing Accessible Post-Diagnostic Dementia Support Guidelines for People with an Intellectual Disability
From
01/01/2021
To
01/11/2023
Summary
People with an Intellectual Disability (ID) are at greater risk of developing dementia than the general population. In particular, those with Down syndrome (DS) are the world's largest group with a genetic risk for Alzheimer's disease (AD), given overexpression of the amyloid precursor protein (APP) gene located on chromosome 21. Despite this high risk, services, both in the general population and ID specific services are ill prepared to provide post-diagnostic support to people with an ID and dementia and their carers, meaning unequal and inadequate access to supports for many across the country. There is currently little systematic research to guide development of post-diagnostic supports for people with ID. With its recent establishment, the National Intellectual Disability Memory Service (NIDMS) in Ireland will offer an accessible systematic approach to diagnosis, resulting in an increased need for post-diagnostic supports for people with ID. The aim of the study, therefore, is to develop accessible best practice guidelines for post-diagnostic dementia supports for people with an intellectual disability in Ireland. This will be achieved through: 1) Identifying current guidelines/recommendations on post-diagnostic dementia care nationally and internationally for the general population and for people with ID. 2) Understanding the current landscape of post-diagnostic dementia support for people with an intellectual disability in Ireland. 3) Understanding the lived experience of accessing and using post-diagnostic dementia support services for people with ID/DS and their families and desires for post-diagnostic services. 4) Identifying gold standard approaches/guidelines to post diagnostic dementia care from specialist ID service providers. The resulting guidelines will identify needed adjustments, and make recommendations for all services on how best to provide post-diagnostic dementia supports to people with ID and their families/carers.
Funding Agency
Health Research Charities Ireland
Person Months
36
Project Title
 PREVENT dementia -DS
From
01/09/2021
To
31/08/2022
Summary
This study will examine the effect of Alzheimer's disease pathology on the organisation of brain networks in people with Down syndrome compared to people in the general population who are at high risk of Alzheimer's disease and people who are at low risk of Alzheimer's disease. People with Down syndrome are at high risk of Alzheimer's disease (AD) because genetic reasons. However, they are typically excluded from Alzheimer's disease prevention research. Including people with Down syndrome in this type of research is important from an equity perspective and could also help us to understand the development and progression of Alzheimer's disease for all. The PREVENT study, is part of an international study examining early biomarkers of Alzheimer's disease in the general population in mid-life and before clinical stages of the disease. This pilot will adapt the PREVENT protocol so that it is suitable for people with Down syndrome. The neuroimaging, blood and neuropsychological data collected in this process will then be analyzed. The organisation of brain networks in people with Down syndrome who don't have any symptoms of Alzheimer's disease will be compared to people from the PREVENT study at high risk for Alzheimer's disease and at low risk for Alzheimer's disease. Neurofilament light protein is a protein that can be measured in the blood and has been found to be a reliable marker of Alzheimer's disease pathology in people with Down syndrome. The association between this protein in relation to the organisation of brain networks in people with Down syndrome will be examined. The relationship between the organisation of brain networks and scores on neuropsychological assessments will be examined. This will give us a better understanding of the early cognitive changes as a result of Alzheimer's disease in people with Down syndrome. Through establishing the adapted PREVENT protocol, this pilot will inform the development of a large national study - PREVENT dementia - DS.
Funding Agency
Alzheimer's Association, Alzheimer's UK, Global Brain Health Institute
Person Months
12
Project Title
 arly Biomarkers of Alzheimer's Disease in People with Down syndrome
From
01/07/2021
To
Summary
People with Down syndrome (DS) have a genetic predisposition to Alzheimer's disease (AD) but have typically been excluded from AD prevention research. Including people with DS is important from an equity perspective and to provide insight into the development and progression of Alzheimer's disease. The PREVENT study, is part of an international study examining early biomarkers of AD in the general population in mid-life and before clinical stages of the disease. This pilot will adapt the PREVENT protocol so that it is suitable for people with DS, and will include people from 20-29, before the onset of AD pathology. Neuroimaging, blood and neuropsychological data collected will be analysed. Specifically, the organisation of brain networks in people with DS prior to the onset of AD pathology will be analysed and it's association with Neurofilament Light (NfL), a protein measured in blood examined. NfL has been found to be a reliable marker of AD pathology in people with DS. This study will give a better understanding of the earliest changes in the AD process in people with DS. Through establishing the adapted PREVENT protocol, this project will inform the development of a large national study - PREVENT dementia - DS.
Funding Agency
Deans Rersearch Initiative
Person Months
12
Project Title
 IDS-TILDA
From
01/11/2021
To
01/11/2024
Summary
Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing Wave 5
Funding Agency
Health Research Board
Project Type
Longitudinal Research Project
Project Title
 Meaning in Life in Older Adults with Intellectual Disability: findings from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA).
From
13/06/2022
To
12/08/2022
Summary
Funding Agency
Health Research Board

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Details Date
Journal Reviewer Journal of Intellectual Disability Research 2018-2020
Reviewer for Research in Developmental Disabilities 2019-2020
Reviewer for Journal of Applied Research in Intellectual Disabilities 2018-2020
Chair of LEAP Committee in School of Nursing and Midwifery 2022
International Advisory Board for Journal of Intellectual Disabilities 2023-present
Course Co-Ordinator for MSc programme for Ageing Health and Wellbeing in Intellectual Disability; Community Health; Dementia 2020-2024
Member of Secretariat for the National Task Group on Dementia and Intellectual Disabilities, US 2023-present
HSE National Dementia Steering Committee 2022
Academic Advisor to Down syndrome Ireland
Member of the Scientific Committee of the Jerome Le Jeune Foundation, Paris 2023-present
Journal reviewer for Alzheimer & Dementia
Journal Reviewer for Journal of Intellectual Disabllities
Journal reviewer for International Journal for Geriatric Psychiatry 2021
Journal reviewer for Environmental Research and Public Health 2021
Journal reviewer for Journal of Policy and Practice in Intellectual Disabilities 2021
Journal reviewer for Neurobiology of Ageing 2021
International Advisory Committee for Journal of Intellectual Disabilities
Ethical Considerations and the Involvement of People with Intellectual Disability as Research Contributors in, 2024, pp154 - [Corrigan Stephanie, Gorman Ashleigh, Yap Mei Lin, Fitzpatrick Miriam, McCallion Philip, McCarron Mary, McGlinchey Eimear], Book Chapter, PUBLISHED
Alzheimer's & Dementia, Wiley, 2024-2025, Notes: [Guest Editor of Down syndrome Special Issue], Editorial Board, PRESENTED
McMahon Martin, Doyle Carmel, Burke à ilish, Fleming Sandra, Cleary Michelle, Byrne Kathleen, McGlinchey Eimear, Keenan Paul, McCarron Mary, Horan Paul, Addressing health inequality and inequity for people with intellectual disabilities: a collective responsibility for all nurses , Tizard Learning Disability Review , 2024, Journal Article, PUBLISHED
McGlinchey Eimear, Duran-Aniotz Claudia, Akinyemi Rufus, Arshad Faheem, Zimmer Eduardo R, Cho Hanna, Adewale Boluwatife Adeleye, Ibanez Agustin, Biomarkers of neurodegeneration across the Global South, The Lancet Healthy Longevity, 5, (10), 2024, Journal Article, PUBLISHED  DOI
McGlinchey Eimear, Corrigan Stephanie, Sheerin Fintan, Yap Mei Lin, Embracing authenticity and challenging norms: Including people with an intellectual disability as lecturers in third level intellectual disability nursing programmes, Nurse Education Today, 138, 2024, p106206-, Journal Article, PUBLISHED  DOI
Fortea Juan, McGlinchey Eimear, Espinosa Joaquín M, Rafii Michael S, Addressing challenges in health care and research for people with Down syndrome , The Lancet , 403 , (10439 ), 2024, p1830 - 1833 , Journal Article, PUBLISHED
Farina Francesca R, Bridgeman Katie, Gregory Sarah, Crivelli Lucía, Foote Isabelle F, Jutila Otto-Emil I, Kucikova Ludmila, Mariano Luciano I, Nguyen Kim-Huong, Thayanandan Tony, Next generation brain health: transforming global research and public health to promote prevention of dementia and reduce its risk in young adult populations, The Lancet Healthy Longevity, 5, (12), 2024, Journal Article, PUBLISHED  DOI
Kibsgaard Larsen, F., Asaad Baksh, R.,McGlinchey, E., Melbye Langballe, E., Benejam, B., Beresford-Webb, J., McCarron, M., Coppus, A., Falquero, S., Fortea, J., Levin, J., V.Loosli, V., Mark, R., Rebillat, A-S., Zaman, S. & Strydom, A., Age of Alzheimer's disease diagnosis in people with Down syndrome and associated factors: Results from the Horizon 21 European Down syndrome consortium, The Journal of the Alzheimer's Association, 20, (5), 2024, p3270 - 3280, Journal Article, PUBLISHED  TARA - Full Text  DOI
McGlinchey, E., Kleinhans, A., Vava, B., Fortea, J., Advancing Equity for People with Down Syndrome in South Africa: An Atlantic Institute Initiative, Trsomy 21 Research Society International Conference, Rome, 5-8 June, 2024, Oral Presentation, PUBLISHED
Fallon, M.,McCallion, P., McCarron, M. & McGlinchey, E., An Exploration of Biopsychosocial Risk Factors for People Ageing with Down syndrome in Ireland, 5th International Conference of the Trisomy 21 Research Society, Rome, 5th - 8th June, 2024, Oral Presentation, PRESENTED
  

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McCarron, M., Daly, L.,Allen, A., Dennehy, H., Buttery, N., Corr, C., McCallion, P., Kennelly, S.,Dunne, P.,and McGlinchey, E., 'Post-diagnostic Dementia Support Guidelines for People with an Intellectual Disability', Launch of the Post Diagnostic Dementia Support Guidelines for People with an Intellectual Disability, Trinity Centre for Ageing and Intellectual Disability, School of Nursing and Midwifery, Trinity College Dublin, Trinity College Dublin, 2024, -, Broadcast, PUBLISHED
Eimear Mc Glinchey, Inclusion of people with Down syndrome across the Alzheimer's disease Continuum, Alzheimer Europe International Conference, Geneva, 8-10 October 2024, 2024, Alzheimer Europe, Invited Talk, PRESENTED
McCarron, M., Daly, L., McCallion, P., Allen, A.P., Buttery, N., Dennehy, H., Kennelly, S., Corr, C., Dunne, P., McGlinchey, E., Post-Diagnostic Dementia Support Guidelines for People with an Intellectual Disability, 17, Trinity College Dublin, March, 2024, Report, PUBLISHED
McCarron, M., Allen, A.P., Buttery, N., Dennehy, H., Kennelly, S., Corr, C., Dunne, P., Daly, L., McCallion P., McGlinchey, E., Voices of Experience: Building Post-Diagnostic Dementia Support Guidelines for People with an Intellectual Disability. Brief Report, 5, Trinity College Dublin, January, 2024, Report, PUBLISHED
McCarron, M., Mc Causland D., Wormald, A., McGlinchey, E., MacGiolla Phadraig, C., Brennan, D., and Burke, EA, Longitudinal Dynamics in the Ageing of People with an Intellectual Disability: Evidence from IDS-TILDA, Data and Knowledge Sharing and Dissemination, Department of Children, Equality, Disability, Integration and Youth, Dec 8th 2023, 2023, IDS-TILDA and Department of Children, Equality, Disability, Integration and Youth, Invited Talk, PUBLISHED
Eimear McGlinchey, Cognitive Reserve and Down syndrome, Alzheimer Association Cognitive Reserve and Down syndrome Professional Interest Area, 28/11/2023, 2023, Alzheimer Association, Invited Talk, PUBLISHED
Fallon, M., McGlinchey, E. & McCarron, M., Modifiable lifestyle factors associated with age of dementia diagnosis., Horizon 21 Consortium F2F Meeting., Munich, Germany., 15th - 16th June, 2023, Oral Presentation, PUBLISHED
McGlinchey, E., Bray, F., Fortea, J., Yap, M-L., Kennelly, S. & McCarron, M., Complex Joy: A Celebration of Brain Health in People with Down Syndrome, Creative Brain Week 2023, Science Gallery, Trinity College Dublin, 9th March, 2023, Oral Presentation, PUBLISHED
Marianne Fallon & Dr. Eimear McGlinchey, Promoting Brain Health Across the Lifespan: People with an Intellectual Disability, Learning Disabilities and Dementia Community of Practice meeting, Online- Wales, 15th July 2021, 2021, Rebecca Hamner, Public Health Wales, Invited Talk, PRESENTED
Darren McCausland, Andrew P. Allen, Margaret Haigh, Fintan Sheerin, Eilish Burke, Eimear McGlinchey, Fidelma Flannery, Niamh Mulryan, Philip McCallion and Mary McCarron, Overcoming Adversity: The Continuing Impact of COVID-19 on People Ageing with an Intellectual Disability in Ireland. Findings from the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) COVID-19 Sub-Study, Trinity College Dublin, December, 2021, Report, PUBLISHED

  


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