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Dr. Miriam Galvin

Associate Professor (Clinical Medicine)
BIOMEDICAL SCIENCES INSTITUTE
      
Profile Photo

Dr. Miriam Galvin

Associate Professor (Clinical Medicine)
BIOMEDICAL SCIENCES INSTITUTE


  Demography   Healthcare Ethics   human geography   intersectional research   Medical Ethics   Philosophy and Epistemology   philosophy of social sciences   research methodology   Social Sciences--Humanistic Emphasis
Project Title
 PRECISION ALS
From
December 2021
To
Summary
Academic-Industry collaboration Multimodal pan European data acquisition Patient data framework and platform for clincial research
Funding Agency
Science Foundation Ireland and Industry
Programme
Spoke
Project Title
 MIRANDA Multidisciplinary Innovation and Research Advancing Neurological care in a Digital Age,
From
March 2022
To
Summary
The MIRANDA consortium of experts in research and practice has designed a comprehensive training programme for healthcare professionals which includes: 1. Creation of an evidence-based eHealth solution for delivery of neuro-rehabilitation 2. Development of a knowledge bank representing multidisciplinary knowledge and decision-making processes 3. Evaluation of professional burden in healthcare professionals and development of guidelines for management 5. Design and clinical integration of digital technology to facilitate communication and remote monitoring of disease progression 6. Implementation of innovative, user-friendly solutions for care.
Funding Agency
HRB
Programme
Collaborative Doctoral Awards
Project Title
 IMPACT
From
To
Summary
European Study of ALS in Europe - Patient input to drug development
Funding Agency
Industry collaboration
Project Title
 Towards Self Care in Headache
From
To
Summary
An innovative community-based model that promotes high quality at low complexity.
Funding Agency
Slaintecare Integration Fund
Project Title
  Developing a Patient and Public Involvement (PPI) training program for the Global Brain Health Institute
From
2020
To
Summary
Development of training programme around PPI in brain health projects
Funding Agency
GBHI, Atlantic Institute

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Details Date
Journal Reviewer: BMJ supportive and palliative care
Journal Reviewer: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
Journal Reviewer: International Journal of Geriatric Psychiatry
Journal Reviewer: BMC Palliative Care
Journal Reviewer: BMJ Open
Conference organisation and Chair European Network to Cure ALS (ENCALS) Dublin . Co-organizer 2015
Conference Organisation Community Activation, Alzheimers Association International Conference, Sao Paulo, Brazil GBHI Fellows 2019
Diversity and Brain Health: Perspectives from the LGBT+ Community in Ireland, GBHI & School of Law TCD June 2019
Conference Chair 30th International Symposium on ALS/MND Perth, Australia Chair, Health Services and Caregiver Burden Session 2019
External Examiner Professional Doctorate in Education Institute of Education, Dublin City University 2021
Research Consultant in evaluation for Atlantic Institute, Oxford University 2019
Contemporary debates in bioethics: Informal caregiving and palliative care Institute for Biomedical Ethics, Basel Switzerland, 2019
Language Skill Reading Skill Writing Skill Speaking
English Fluent Fluent Fluent
French Medium Basic Basic
Irish Medium Medium Basic
Spanish Fluent Medium Medium
Details Date From Date To
International Health Humanities Network 2018 present
International Society for Quality of Life Research 2019 present
European Care Pathways Association 2013 2015
Neuropsychoanalysis (NPSA) Ireland Study Group 2016 2018
American Academy of Neurology 2017 2018
LATAM: Latin American Consortium - multicentre translational initiative to study neurodegenerative conditions 2019 present
Ruben P.A. van Eijk, Daphne N. Weemering, Sarah Opie-Martin, Jordi W. J. van Unnik, Alejandro Caravaca Puchades, Adriano Chiò, Philippe Corcia, Miriam Galvin, Roger Pamphlett, Mark Heverin, Frederik Hobin, Oskar Holmdahl, Caroline Ingre, Nikita Lamaire, Éanna Mac Domhnaill, Harry McDonough, Umberto Manera, Christopher McDermott, Robert McFarlane, Mohammed Mouzouri, Fouke Ombelet, Mónica Povedano Panadés, Stefan Sennfält, Pamela J. Shaw, Carlos Pastor"Vargas, Philip Van Damme, Rosario Vasta, Jan H. Veldink, Kevin Mouzat, Leonard H. van den Berg, Natural history of the revised ALS functional rating scale and its association with survival: the PRECISION-ALS Extant Study, Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 26, (sup1), 2025, p30 - 40, p30-40 , Journal Article, PUBLISHED  DOI
Miriam Galvin, Mark Heverin, Éanna Mac Domhnaill, Robert McFarlane, Dara Meldrum, Deirdre Murray, Anthony Bolger, J. Thomas Connelly, Kieran Flynn, Ellen Fox, Frances Gibbons, Lucy Hederman, Sinéad Impey, Imelda O"Keefe, Ciara O"Meara, Declan McKibben, Matthew Nicholson, Gaye Stephens, Jouke van Dijk, Leonard van den Berg, Orla Hardiman, Challenges and solutions to complex data governance issues in cross-national, cross-sectoral, multidisciplinary real world health research: a descriptive overview, Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 2025, p1 - 7, p1-7 , Journal Article, PUBLISHED  DOI
Rosario Vasta, Fouke Ombelet, Frederik Hobin, Umberto Manera, Ammar Al"Chalabi, Alejandro Caravaca Puchades, Philippe Corcia, Miriam Galvin, Orla Hardiman, Mark Heverin, Oskar Holmdahl, Caroline Ingre, Nikita Lamaire, Christopher McDermott, Éanna Mac Domhnaill, Harry McDonough, Robert McFarlane, Mohammed Mouzouri, Sarah Opie-Martin, Mónica Povedano Panadés, Stefan Sennfält, Pamela J. Shaw, Carlos Pastor"Vargas, Leonard H. van den Berg, Ruben P.A. van Eijk, Jan H. Veldink, Daphne N. Weemering, Philip Van Damme, Adriano Chiò, Real-world prognostic role of riluzole use in ALS: a multi-center study from PRECISION-ALS, Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 26, (sup1), 2025, p50 - 60, p50-60 , Journal Article, PUBLISHED  DOI
Robert McFarlane, Sarah Opie-Martin, Alejandro Caravaca Puchades, Adriano Chiò, Philippe Corcia, Miriam Galvin, Mark Heverin, Frederik Hobin, Oskar Holmdahl, Caroline Ingre, Nikita Lamaire, Éanna Mac Domhnaill, Umberto Manera, Christopher McDermott, Harry McDonough, Mohammed Mouzouri, Fouke Ombelet, Mónica Povedano Panadés, Stefan Sennfält, Pamela J. Shaw, Carlos Pastor"Vargas, Jan H. Veldink, Michael A. van Es, Leonard H. van den Berg, Ruben P.A. van Eijk, Rosario Vasta, Daphne N. Weemering, Kevin Mouzat, Orla Hardiman, Clinical trajectories of genetic variants in ALS: a European observational study within PRECISION-ALS, Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 26, (sup1), 2025, p41 - 49, p41-49 , Journal Article, PUBLISHED  DOI
Sarah Opie-Martin, Mónica Povedano Panadés, Stefan Sennfält, Carlos Pastor"Vargas, Jan H. Veldink, Michael A. van Es, Leonard van den Berg, Ruben P.A. van Eijk, Rosario Vasta, Daphne N. Weemering, Ammar Al"Chalabi, Pamela Shaw, Christopher McDermott, Orla Hardiman, Harry McDonough, Robert McFarlane, Alejandro Caravaca Puchades, Adriano Chiò, Philippe Corcia, Miriam Galvin, Mark Heverin, Frederik Hobin, Oskar Holmdahl, Caroline Ingre, Nikita Lamaire, Éanna Mac Domhnaill, Umberto Manera, Mohammed Mouzouri, Fouke Ombelet, Examining changing working status and caregiver assistance in amyotrophic lateral sclerosis (ALS) using large-scale European databases as part of PRECISION-ALS, Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 26, (sup1), 2025, p20 - 29, p20-29 , Journal Article, PUBLISHED  DOI
Stefan Sennfält, Ammar Al"Chalabi, Alejandro Caravaca Puchades, Adriano Chiò, Philippe Corcia, Miriam Galvin, Orla Hardiman, Mark Heverin, Frederik Hobin, Oskar Holmdahl, Nikita Lamaire, Éanna Mac Domhnaill, Harry McDonough, Umberto Manera, Christopher McDermott, Robert McFarlane, Mouhammed Mouzouri, Fouke Ombelet, Sarah Opie-Martin, Mónica Povedano Panadés, Pamela J. Shaw, Carlos Pastor"Vargas, Philip Van Damme, Leonard van den Berg, Ruben P.A. van Eijk, Rosario Vasta, Jan H. Veldink, Daphne N. Weemering, Caroline Ingre, Respiratory function, survival, and NIV prevalence over time in ALS - a PRECISION ALS study, Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 26, (sup1), 2025, p61 - 72, p61-72 , Journal Article, PUBLISHED  DOI
Eimear McGlinchey, Kirti Ranchod, Rayne Stroebel, Bongiwe Lusizi, Miriam Galvin, Atholl Valdon Kleinhans, Juan Fortea, Jaco Hoffman, Sinethemba Makanya, Bridging perspectives: The value of collaboration between Traditional Healing Practitioners and Medical Doctors in dementia research and care in South Africa, Alzheimer s & Dementia, 21, (6), 2025, Journal Article, PUBLISHED  DOI
Alejandro Caravaca Puchades, Harry E. McDonough, Ammar Al"Chalabi, Adriano Chiò, Philippe Corcia, Miriam Galvin, Orla Hardiman, Mark Heverin, Frederik Hobin, O. J. M. Holmdahl, Caroline Ingre, Nikita Lamaire, Éanna Mac Domhnaill, Umberto Manera, Robert McFarlane, Mohammed Mouzouri, Fouke Ombelet, Sarah Opie-Martin, Stefan Sennfält, Carlos Pastor"Vargas, Jan H. Veldink, Michael A. van Es, Leonard H. van den Berg, Ruben P.A. van Eijk, Rosario Vasta, Daphne N. Weemering, Pamela J. Shaw, Christopher McDermott, Mónica Povedano Panadés, Mapping the natural history of amyotrophic lateral sclerosis: time-to-event analysis of clinical milestones in the pan-European, population-based PRECISION-ALS cohort, Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 26, (sup1), 2025, p8 - 19, p8-19 , Journal Article, PUBLISHED  DOI
Turner, J. and Impey, S. and Gibbons, F. and Bolger, A. and Stephens, G. and Hederman, L. and Hamed, R. and O'Meara, C. and de la Varga, F. and Kommala, J. and Nicholson, M. and Farrell, D. and Galvin, M. and Heverin, M. and Mac Domhnaill, Ã . and McFarlane, R. and Meldrum, D. and Murray, D. and Hardiman, O., Data and Process Harmonisation of MultiNational, Multi-Site Research Data, Studies in Health Technology and Informatics, 316, 2024, p1411-1412 , Notes: [cited By 0], Journal Article, PUBLISHED  DOI
Tappenden, P. and Hardiman, O. and Kwon, S.-H. and Mon-Yee, M. and Galvin, M. and McDermott, C., A Model-Based Economic Evaluation of Hypothetical Treatments for Amyotrophic Lateral Sclerosis in the UK: Implications for Pricing of New and Emerging Health Technologies, PharmacoEconomics, 42, (9), 2024, p1003-1016 , Notes: [cited By 1], Journal Article, PUBLISHED  DOI
  

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Connelly JP, Boland Erin, Buckley Brenda, Curley Niall, Refaie Amr El, Galvin Miriam, Gibb Matthew, Graham Liz, Lennon Brendan, Valdes Alejandro Lopez, Mullally Anne-Michelle, Muller Nicole, Nolan-Palmer Janice, O'Nolan Gerald, O'Reilly Ciara, Rezk Valeria Raaft, Rochford-Brennan Helen, Tobin Katy, Tormey Helen, Trepel Dominic, Leroi Iracema, SENSE-Cog Residential Care: Hearing and vision support for residents with dementia in long-term care in Ireland: Protocol for a pilot cluster randomised controlled trial, 2023, -, Notes: [Pre-Registered Study], Miscellaneous, PUBLISHED
Carol Rogan, Dawn Higgins, Yao Chen, Emilia Grycuk, Iracema Leroi, Andrew Wormald, Miriam Galvin, Changes & Interruptions since COVID-19: Caregivers of people with Brain Health Challenges - a qualitative analysis, CLIC Caregivers Symposium 2022, March 2022, 2022, Conference Paper, PRESENTED
Aaron Koay, Miriam Galvin, Stand Up, Speak Out! Racial Justice in Healthcare Education: Experiences of Minoritised Ethnic Students,, Racial Justice Report Launch, October 2022, 2022, TCD Equality Fund, FHS EDI group TCD, Invited Talk, PRESENTED
Aaron Koay, Miriam Galvin, Claire Murphy, Cathy Cunningham, Teresa Buczkowska, Valéria Aquino, Lena Doherty, Olayinka Aremu, Vibhuti Arya, Maria Elena Costa Sa and Lucy Michael, Stand Up, Speak Out! Racial Justice in Healthcare Education: Experiences of Minoritised Ethnic Students, TCD, October, 2022, Report, PUBLISHED
Grycuk, Emilia; Almirall-Sanchez, Arianna; Kinchin, Irina; Galvin, Miriam; Dunne, Nikki; McGlinchey, Eimea; Lawlor, Brian; Chen, Yaohua; and Leroi, Iracema;, Care burden, loneliness, and social isolation in informal caregivers in Ireland: Before and during COVID-19, Family Carers Ireland, Virtual, 2021, 2021, Oral Presentation, PRESENTED
Roe L & Galvin M, How health system design and delivery can fail to support the needs of LGBT+ older adults, Inclusion Health Seminar, 2020, Invited Talk, PRESENTED
Galvin M, Informal caregiving and palliative care, Contemporary debates in bioethics, Switz, 2019, Invited Talk, PUBLISHED
Galvin M, Maguire S, Cawley E, Bernie Corr, Contextualising Cognitive & Behavioural Change, caregivers, families and health care professionals, Healthcare Professionals Study Day, Beaumont Hospital, 2016, Oral Presentation, PRESENTED
Galvin, M, A Report on the Co. Wicklow Anti-Bullying Survey of Post-primary School Student, 2011, Report, PUBLISHED
Galvin, M, People's Assessment of Need Survey, Carnew, , Health Services Executive, 2008, Report, PUBLISHED

  


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