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Dr. Lucy Hederman

Assistant Professor (Computer Science)

  CLINICAL DATABASE   CLINICAL DECISION MAKING   Databases, database management, data mining   Decision support tools   Information management   Knowledge and data engineering   Knowledge Management
 Primary Care Research Centre
 LEARN: Organisational Learning in Irish Aid Organisations

Details Date From Date To
Member, Irish Computer Society 1990
Member, Association for Computing Machinery 1992
Member, Healthcare Informatics Society of Ireland 1998
Karl Gisslander, Matthew Rutherford, Louis Aslett, Neil Basu, François Dradin, Lucy Hederman, Zdenka Hruskova, Dagmar Jäger, Hicham Kardaoui, Sabina Licholai, Declan O"Sullivan, Jennifer Scott, Mårten Segelmark, Richard Straka, Michelangelo Tesi, Augusto Vaglio, Arthur White, Krzysztof Wójcik, Beyza Yaman, Mark A Little, Aladdin J Mohammad*, Data quality and patient characteristics in European ANCA-associated vasculitis registries: data retrieval by federated querying, Annals of the Rheumatic Diseases, 83, (1), 2024, p112 - 120, Journal Article, PUBLISHED  DOI
Tochukwu Ikwunne, Lucy Hederman, P. J. Wall, Theoretical Perspectives Towards Culture-Centered User Engagement Design for Mobile Health in the Global South, Proceedings of the Future Technologies Conference (FTC) 2022, Volume 3, 2023, p295--311 , Journal Article, PUBLISHED  DOI
Tochukwu Ikwunne, Lucy Hederman, PJ Wall, DECENT: A sociotechnical approach for developing mobile health apps in underserved settings, Digital Health, (9), 2023, Journal Article, PUBLISHED  DOI
Abdullahi Abubakar Kawu, Dympna O"Sullivan, Lucy Hederman, Mirjam Van Reisen, Barbara Magagna, FAIR4PGHD: A framework for FAIR implementation over PGHD, FAIR Connect, 1, (1), 2023, p35-40 , Journal Article, PUBLISHED
Uetova, E., Hederman, L., Ross, R., O"Sullivan, D., The Potential and Limitations of Conversational Agents for Chronic Conditions and Well-being, CEUR Workshop Proceedings, 3474, 2023, Journal Article, PUBLISHED
Hederman, L., Berry, D., Ormazabal, A., Clinician's perspective on trusting Patient Generated Health Data for use in clinical decision-making: A qualitative interview study, Proceedings - IEEE Symposium on Computer-Based Medical Systems, 2023-June, 2023, p252-256 , Journal Article, PUBLISHED
McFarlane R, Galvin M, Heverin M, Mac Domhnaill É, Murray D, Meldrum D, Bede P, Bolger A, Hederman L, Impey S, Stephens G, O'Meara C, Wade V, Al Chalabi A, Chiò A, Corcia P, van Damme P, Ingre C, McDermott C, Povedanos M, van den Berg L, Hardiman O., PRECISION ALS-an integrated pan European patient data platform for ALS., Amyotroph Lateral Scler Frontotemporal Degener., 2023, Notes: [doi: 10.1080/21678421.2023.2215838. Online ahead of print. PMID: 37221648], Journal Article, PUBLISHED
Kawu, A.A., Hederman, L., Doyle, J., O'Sullivan, D., Patient generated health data and electronic health record integration, governance and socio-technical issues: A narrative review, Informatics in Medicine Unlocked, 37, 2023, Journal Article, PUBLISHED
Kawu, A.A., Kievit, R., Abubakar, A., Reisen, M.V., O'Sullivan, D., Hederman, L., Exploring the Integration of a Patient Generated Health Data in a FAIR Digital Health System in Low-Resourced Settings: A User-Centered Approach, ACM International Conference Proceeding Series, 2023, p215-220 , Journal Article, PUBLISHED
Ikwunne, T., Hederman, L. and Wall, P.J., The DECENT Toolkit to Support Design of User Engagement of Mobile Health Technologies from a Practice Theory Perspective, Co-creating for Context in the Transfer and Diffusion of IT: IFIP WG 8.6 International Working Conference on Transfer and Diffusion of IT, TDIT 2022, Maynooth Ireland, June 2022, 2022, pp94 - 104, Conference Paper, PUBLISHED

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PJ Wall, David Lewis, Lucy Hederman, Causal Explanation of Mobile Health (mHealth) in Sierra Leone - A Morphogenetic Analysis, Development Studies Association of Ireland (DSAI) Annual Conference 2018, Dublin, Ireland, October 2018, 2018, Conference Paper, PUBLISHED
PJ Wall, David Lewis, Lucy Hederman, Information and Communications Technology for Development (ICT4D) - A Review of the Field and Future Priorities in a Changing International Context, Development Studies Association of Ireland (DSAI) Annual Conference 2017, Dublin, Ireland, November 2017, 2017, Conference Paper, PUBLISHED
Lucy Hederman, Information governance issues for secondary use of health data, Health Informatics Society of Ireland, AVIVA Stadium, Dublin, 16 November 2016, 2016, ICS, Invited Talk, PUBLISHED
Liang Xiao, Grainne Cousins, Tom Fahey, Borislav Dimitrov, Lucy Hederman, , Developing a rule-driven clinical decision support system with an extensive and adaptative architecture, IEEE 14th International Conference one-Health Networking, Applications and Services, 10-13 October 2012, IEEE, 2012, Conference Paper, PUBLISHED


The main unifying thread of my research has been supporting knowledge work, especially clinical decision making, by leveraging data and documents. My recent research addresses (1) integration of diverse data sets to support clinical research, specifically on rare diseases (ANCA-vasculitis and MND) for which data integration across jurisdictions is essential (viz. FAIRVASC, PARADISE, and Precision-ALS projects) and (2) technical and socio-technical issues for adoption of patient-generated health data (such as home health device data) into clinical decision making. - All my research has been strongly interdisciplinary, requiring a deep engagement with clinicians, clinical researchers and social scientists. My research colleagues greatly appreciate my role in facilitating communication between disciplines. - My current H-index is 15 with a recent upward trajectory. I have more than 70 (?? 50 in table later??) publications. - I have brought in a total of €xxxk funding as a collaborator on more than 12 funded research projects. - I lead the Heterogeneity and Interoperability (H&I) challenge (?budget for H&I) in the SFI funded ADAPT 2 centre. - I have supervised 4 successful PhDs and 2 research MSc and co-supervised 6 successful PhDs. I am currently supervising 4 PhDs and co-supervising 4 more. - I have supervised dissertations of more than 65 taught MSc students. More than 55 of these were Health Informatics students, many of whose projects, or skills acquired, have impacted healthcare in Ireland. - I was founder of 2 TCD spinouts aligned with my research, PBOC and BIOLOGIT.