Professor Imelda Coyne

Summary

Funding Agency

Danish Diabetes and Endocrine Academy

Project Type

Postdoctoral fellowship

Person Months

24

Summary

Prof. Geraldine Boylan (PI) & Prof Eleanor Molloy (Co-PI) The HRB Irish Network for Children's Clinical Trials (In4kids) aims to support researchers in Ireland to develop and deliver a portfolio of high quality clinical trials that will benefit children's health.

Funding Agency

HRB

Project Type

Developing a clinical trials network for clinical research with children

Summary

Nearly a third of adolescents in the United States suffer from at least one chronic condition, many of which require prescription medications for effective management. Research has shown that youth have questions about their chronic conditions but often do not ask their providers these questions. Active involvement, including question-asking, is important because interactive discussions with providers can help adolescents learn how to self-manage their symptoms, treatment regimens, and health. Self-management can lead to better health outcomes and a reduction in emergency room visits, unplanned physician visits, and reduced risk of disability over time. Adolescents have reported several barriers to asking questions during office visits, including feeling intimidated, forgetting questions, and having parents dominate the conversation with the provider. We plan to develop an intervention for youth with attention-deficit/hyperactivity disorder (ADHD). Although youth search for health information on-line, there are no good health websites with videos in the U.S. that encourage youth with chronic health conditions to be more involved in their health care and communicate with their health care providers so that they can learn how to better self-manage their conditions. This program's purpose is to: (a) develop and evaluate a brief ADHD question prompt list/video intervention for use by youth and parents during pre-visit wait time to empower them to be more actively involved during visits and (b) create a website with youth that provides tips and videos on how youth can raise issues and ask questions when talking to health care providers.

Funding Agency

Duke Endowment

Programme

Duke Endowment Funding Cycle

Project Type

Research with adolescents

Summary

Dr. Veronica Lundberg (PI), Dr Catharina Eriksson, Torbjörn Lind, Dr. Anncristine Fjellman-Wiklund, Prof. Imelda Coyne, Purpose The overall purpose of the project is to make it easier for children and young people with long-term illness to communicate with healthcare professionals and participate in issues related to their illness during healthcare encounters, and to facilitate the transition from child and adolescent healthcare to adult healthcare. Specific purposes 1. To explore the experiences young adults with a rheumatic disease have from communicating and cooperating with healthcare professionals as children and young people, and being involved in healthcare encounters. 2.To explore young adults' experiences of the transition from child and adolescent healthcare to adult healthcare. 3. To design an intervention that makes it easier for children and young people to be involved and to be able to communicate more easily with healthcare professionals during healthcare encounters, and to facilitate the young people's transition from adolescent healthcare to adult healthcare

Funding Agency

Norrbacka Eugenia.

Project Type

Qualitative psychosocial research

Summary

Funding Agency

National Children's Research Centre

Programme

NCRC Fellowship

Project Type

Clinical research

Person Months

36